The PedNet Cohort
Data were retrieved from the ‘PedNet Registry Cohort’ which is owned and
administered by the ‘PedNet Haemophilia Research Foundation’, consisting
of 31 international hemophilia treatment centers in 18 countries and
registered at ClinicalTrials.gov at NCT02979119.A complete list of
PedNet members is added in the appendix. Approval for data collection
was obtained from each center’s ethical review board, and written
informed consent was obtained from the parents or guardians of all
participants, in accordance with the Declaration of Helsinki.