The PedNet Cohort
Data were retrieved from the ‘PedNet Registry Cohort’ which is owned and administered by the ‘PedNet Haemophilia Research Foundation’, consisting of 31 international hemophilia treatment centers in 18 countries and registered at ClinicalTrials.gov at NCT02979119.A complete list of PedNet members is added in the appendix. Approval for data collection was obtained from each center’s ethical review board, and written informed consent was obtained from the parents or guardians of all participants, in accordance with the Declaration of Helsinki.