Route to diagnosis
The route to diagnosis is detailed in Figure 2. Upon onset of symptoms,
the majority of patients (n=92) first visited a paediatrician, followed
by 13 patients who visited a neurologist). 88% of all patients were
treated at a private hospital. 90% of patients had 1-3 visits to HCP
prior to diagnosis. There was an equal distribution of distance
travelled between home and the hospital where the patient was diagnosed.
Despite 64% of all patients residing in the city, only 35% of all
patients travelled <20km to get diagnosed. 19% travelled
<100km, 27% travelled between 100-500km and 19% travelled
>500km. Almost three quarters of all patients were self-
financed (73%), whereas the rest received mixed funding (11%), free
treatment (9%) or were covered by insurance (7%).