Results
52 out of 56 eligible participants completed the study (two actively
refused; two did not complete all questionnaires). Our final sample was
racial/ethnically diverse (non-Hispanic white: n=25,48.1%) with equal
sex representation (female: n=27,51.9%) (Table 1 ). Leukemia
was the most common diagnosis (n=30;57.7%).
Regarding feasibility/acceptability, most participants rated their
overall study experience favorably (Table 2 ). A majority felt
prepared to answer study questions based on their informed consent. Most
participants felt comfortable and had enough privacy to answer sensitive
questions. No workflow or technical difficulties were reported.
For descriptive data, 26 participants (50%) reported ACEs (mean total
number of ACEs 1.3±1.7; range 0-7). The most common ACEs endorsed were
emotional abuse (e.g., parent/caregiver had repeatedly sworn
at/insulted/put down the participant; n=12), parental separation/divorce
(n=11), and having a member of their household engaged in substance
misuse (n=8). The mean resilience score for participants was 75.2±9.0
(range 49-85), indicating overall “High” resilience. Categorical
breakdowns were as follows: five scored “Low” (9.6%), eight scored
“Moderate” (15.3%), ten scored “High” (19.2%), and 29 scored
“Exceptional” (55.8%). Mean age at assessment was different between
those with ACEs (15.8±6.0 years) and those without (11.8±7.8 years)
[t (46.77)=-2.07,p =0.04]. Those with ACEs were more
likely to self-endorse mental health issues [zero ACEs: n=4,15.4%; ≥1
ACE: n=11,42.3%;X2 (1,N=52)=4.59,p =0.03] and substance
misuse [zero ACEs: n=6,23.3%; ≥1 ACE: n=14,53.8%;X2 (1,N=52)=5.20,p =0.02]. Participants
with ACEs had lower resilience compared to those without ACEs, with five
participants with ACEs scoring “Low” (≤62) compared to zero without
ACEs and ten participants with ACEs scoring “Exceptional” (≥77)
compared to 19 participants without ACEs
[X2 (3,N=52)=9.39,p =0.02]. We did not
find differences in sex, race/ethnicity, annual household income,
insurance type, and chronic health condition endorsement between those
with and without ACEs.