Conclusion
The disease elimination initiative is a major strategic and political challenge for governments, civil society, academia, and the private sector. The government has launched a number of SCD eradication initiatives, such as training, screening, data management, and financial help, but it now needs to develop a multi-sectoral strategy under a single umbrella with the shared objective of eliminating SCD by 2047. The psychosocial effects of SCD are substantial. Low self-esteem and a sense of hopelessness emerges in SCD patients due to ongoing discomfort (recurrent pain episodes), frequent hospital visits, a lack of professional possibilities, dread of an early death, financial load, and societal ignorance. Ultimately, these instances point to depression in patients. For reducing psychological issues among SCD patients there is a pressing need for including the six support pillars, as suggested here, in the road map of SCD elimination programs. This will create a strong network for awareness about disease, the treatment and monitoring of patients. The inclusion of support pillars in healthcare facilities and ecosystem would guarantee SCD patients a high quality of life because they serve as a tipping point for their psychological well-being. Efficient management of SCD requires combined approach of clinical parameters along with psychological parameters. These pillars offer a comprehensive approach that encompasses various aspects of support, education, and empowerment for individuals and families affected by SCD. The implementation of a comprehensive and multidisciplinary approach by the government is crucial for addressing the diverse needs of individuals affected by SCD. To ensure effective support, a well-planned infrastructure or roadmap should be established. By integrating these pillars, policymakers can create a supportive environment that addresses both the physical and psychological burdens associated with sickle cell disease. This holistic approach will not only improve the quality of life for individuals with the condition but also promote a more inclusive and compassionate society that values the well-being of all its members Just like a vibrant garden, the study of SCD has experienced remarkable growth, encompassing the intricate aspects of psychological factors within the management approach. With a strong foundation established, it radiates a beacon of optimism for numerous individuals, spreading its therapeutic influence to those around the globe who endure the burdens of SCD “The goal of the support pillars is to provide ”happy, prolific and long life those who live with SCD”
Ethic statement - Not applicable