1. FAMILY
Families of SCD individuals confront a variety of difficulties, from psychosocial issues to economic difficulties. The preliminary support pillar of SCD patients is their family. They provide physical, emotional as well as economic support to the patients. Proximities of family member and friends give SCD patients the feeling of security and confidence. Spending time with family enhances the benefit of treatment and motivates the patient for healthy habits. Family can help create a positive environment for recovery. Along with family support to the patients of SCD, family resilience is important firstly for examining family dynamics, enduring a crisis, making the most of opportunities for growth, and learning how to help others in similar circumstances. Family resilience is viewed as a process that develops over time as opposed to a quality. It opens a channel for identifying and developing crucial family strengths and resources that can lessen stress and susceptibility in high-risk situations, promote healing and growth after crises, and help families get through protracted adversity.14
There is need of education in terms of (i) knowledge of the child’s health condition, (ii) common symptoms and care, and (iii) psycho-social problems and coping mechanism. Parents, especially mothers, have practical and psychological challenges when raising a child with SCD.13
Health education can impart mothers the knowledge and skills they need to reduce or eliminate the conditions that might lead to SCC, including as keeping the child warm, maintaining hydration, making the environment jovial, and engaging in lesser physical activity. This approach enables mothers to keep their independence while asserting control over the welfare of their children.15
In tribal context, the women play a significant role in the management of their natural, social, and economic resources. However, they continue to be behind because of traditional values. When compared to men, women have a higher social status and economic worth in tribal societies and women are considered more essential than their male counterparts in the upbringing of children, as men are typically involved in social and economic activities rather than caring for their families. In the tribal setting, women must be imparted health education since they play a vital role in the household. Most importantly, this health education must be provided in their own tongue so that they can comprehend SCD. Previous study has found that SCD patients experience a great sense of acceptance among the community from their families, friends, and the school support17 .