“in antenatal stage at my 20-week scan, where you know I was going there really excited to find out what, am I going to have a boy or a girl. Half-way through the scan the lady who was doing the scan kind of went quiet and then said that she needs to get her colleague….and I just straight away knew there was something wrong. The other lady came in and she did say that she can’t see his stomach. They got me an appointment the following day to see a consultant and then we discovered that his stomach is placed on the other side. So, through the antenatal stage I had lots of scans, I went to see the doctor, cardiologist to check his heart. Then I had a c section…. it was just horrendous. …. they took him out, I had him with me just a few seconds and they take him to intensive care unit because they had to check him ….. I couldn’t see him for like 5 hours, I didn’t know what was going on.” (mother 15)
Parents credited the identification of abnormal situs to an earlier diagnosis for their child. Some parents remembered PCD being mentioned as a possibility during their pregnancy or shortly after.