“I find it quite difficult because it is a reminder I think of how serious his condition is and I struggle with going ……it would just bring up a lot of emotions and I’d get really upset and I think I get really fearful even though they are a really….they’re really supportive …….. having a whole team of people was frightened me at first and ….uhm…..it…because it made everything so…..I mean it was very serious to me anyway….but it just….made it even more serious…and more scary but….I knew that they were there for ….for a good reason, I did not want my son to have all this….need, all these people” (mother 7)
It could also be quite stressful due to the emotional/behavioural response of the child. As mentioned by this mother, parents needed to prepare their child for the visit and often rewarded them for compliant behaviour: