“I think also, with COVID-19, that’s a completely different
story. COVID-19 itself is really anxiety provoking and for someone who,
you know their son has PCD, where we don’t fully know how he’s going to
react because I understand this is pretty much case by case, the anxiety
is even higher. He has to go to school because there isn’t a shielding
group 3 anymore. God knows what he is going to bring back from that
school…..You know any kind of social contact,…outside of
our house, so that’s even more frightening for us” (mother 15)
Some parents deferred start of school for an additional year. All
parents mentioned that they had deferred any holiday activities. Several
parents mentioned that the COVID-19 pandemic had impacted on their
child’s social interaction outside of the immediate household,
especially ability to attend sport activities. COVID-19 caused an
additional level of social isolation for the family caring for a
vulnerable child. This mother mentioned that shielding during the
beginning of the COVID-19 pandemic impacted on social development of her
child: