“And every doctor we went to was like ”he will grow out of it” or ”it is probably reflux.” He was on reflux medication, didn’t help. They always had some sort of excuse, they used to just shrug it off.” (mother 10)
These experiences differed from parents who already had experience of PCD. In the following narrative a mother who already had an older child with PCD describes the emotional impact of the pre-diagnostic period of her older child compared of her youngest child.