“I work part time, I work 2 days a week, because after my daughter got diagnosed with PCD it was just too much I just couldn’t cope working any more than 2 days, um I just was really run down and tired and taking too much time off. I wasn’t sleeping well, I had to go down doing 2 days. Even so I do 2 days, I’m still struggling, I’m just thinking I might have to give up work, but financially we can’t cope to be honest if I did sort of give up work.” (mother 14)
Another mother explained that she had to stop working out of fear her children would pick up illnesses in other people’s care and how this had a major impact on her and her own life expectations.