Essential Site Maintenance: Authorea-powered sites will be updated circa 15:00-17:00 Eastern on Tuesday 5 November.
There should be no interruption to normal services, but please contact us at [email protected] in case you face any issues.

loading page

“IT JUST MADE ME FEEL BETTER”: QUALITATIVE EXAMINATION OF THE IMPLEMENTATION OF A NOVEL VIRTUAL PSYCHOSOCIAL SUPPORT PROGRAM FOR ADOLESCENTS WITH CANCER
  • +6
  • Kilfoy A,
  • Panesar P,
  • Hashemi E,
  • Masama T,
  • Pereira M,
  • Liu W,
  • Sarah Alexander,
  • Chana Korenblum,
  • Lindsay Jibb
Kilfoy A
University of Toronto
Author Profile
Panesar P
The Hospital for Sick Children
Author Profile
Hashemi E
The Hospital for Sick Children
Author Profile
Masama T
The Hospital for Sick Children
Author Profile
Pereira M
The Hospital for Sick Children
Author Profile
Liu W
The Hospital for Sick Children
Author Profile
Sarah Alexander
University of Toronto
Author Profile
Chana Korenblum
University of Toronto
Author Profile
Lindsay Jibb
University of Toronto

Corresponding Author:[email protected]

Author Profile

Abstract

Background: Adolescents with cancer routinely report feelings of isolation and exclusion, including from medical decision-making. To address this problem and support adolescents, we designed and implemented into clinical practice the novel, virtual, weekly Teens4Teens peer support group and patient education program. Objective: We examined the views of participating adolescents, program guest speakers, and program moderators as they pertained to the need for the program and its feasibility, acceptability, and perceived impact. Methods: We recruited all available adolescents, moderators, and guest speakers who participated in Teens4Teens to take part in audio-recorded, semi-structured interviews. Interviews were transcribed, coded, and analyzed using thematic analysis. Results: We conducted 21 interviews across participant groups. We identified four broad themes: pathways into the Teen4Teens program, Teens4Teens implementation capacity, perspectives of the positive impact of Teens4Teens and suggestions to improve Teens4Teens. These themes described a perceived need for adolescent-centered psychosocial programing in pediatric cancer care, provided lessons on how best to build and apply such a program in practice, and highlighted the value of the program for both adolescents and clinicians’ acceptability, feasibility, and perceived utility. Conclusion: Adolescents, guest speakers, and moderators valued Teens4Teens and made suggestions to retain or improve capacity to routinely implement the program. Adolescent-tailored psychosocial programming such as Teens4Teens is positioned to be integrated into clinical care with relative ease and may serve to improve the cancer care experience of adolescents and their families.